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Wednesday, 24 June 2009

  • Molly J cont.

    Somehow Cami and Molly made it through many months of chemo.  Any child's first birthday is special but we really celebrated Molly's birthday!  Steve, Cami and Molly moved to Bremerton and Seattle Children's Hospital is the place where Molly goes for her checkups now.  We breezed through her first checkup there.  At her second checkup we were not so lucky.  I think all parents and grandparents of ill children get so they read nurse, doctor and technician's faces.  Looks of concern or puzzlement are not good. We were sent from xray straight to the oncologist which started my heart pounding.  There is a schedule we always follow ultrasound - xray - lab - doctor.  Going out of order is not good. When the doctor walked in she said "This is not information we like to give at a checkup." They found something of concern.  Actually a couple of somethings at the surgery site. I choked back my tears and tried to distract Molly while poor Cami broke down.  The doctor advised to not give Molly any more food as they would be putting her under for an intensive scan.  She left the room for what seemed like an eternity but was probably only a few minutes.  When the doctor came back she told us that they had called in a senior oncologist who thought that the doctor was "over reacting".  In the next few minutes the senior doctor came in and advised us to wait 6 weeks to see if the objects would grow or stay the same.  We waited the 6 weeks and went from a light place to a dark place depending on the day or hour.  Courtnee, Cami, Molly and I went to the appointment and received the loveliest, must delicious, most wonderful news that could ever be reported.  "Molly is fine."

Monday, 22 June 2009

  • Molly Jane Part II

    Cami and I reported to the ped's office with tiny Molly in towe.  Strangely, Cami had picked the peditrician on advice from her next door neighbor.  When she actually called to give the new doctor information she suddenly could not remember his name.  The receptionist went down the list and Cami thought one of them sounded familiar so she picked hm. As it turned out we were going to see the doctor her neighbor recommended but not the one she had chosen. Not the Abe Lincolnesk doc that showed up the night Molly was born.  We were seeing the originally recommended doctor only because the doctor who had come the night Molly was born had gone on a vacation It was a mistake...strange.  This doctor was a really nice man - asian - very small and he was looking at us with great sympathy.  He expressed his congrats then said "I am so sorry to give you this information but so glad you picked my partner by mistake.  I would not have caught this.  Your baby has a large mass in her kidney."  Poor Cami fell apart.  She cried harder then I have seen her cry doing this entire ordeal.  She was exhausted. Two days out of the hospital after a c-section.  Her first baby.  He referred us to Dornbecker in Portland.  An appointment was made for us for the next day.  Cami was trying so hard to breast-feed.  She was getting up all night...hobbling around with c-section after pain and dealing with all the hormone changes that happen after having a baby.  I tried so hard to say the right things.  I was terrified.

    When we showed up at Dornbecker Children's Hospital in Portland,Oregon we were directed to the Oncology department.  Cami, Steve and I could hardly look at each other when we found out where we were supposed to go.  The Oncology department?  There must be some mistake!  The waiting room was full of poor little tiny children who were bald and looking miserable and sick.  Molly did not belong here - we were sure of it! Steve went to another floor to get us coffee.  I held new born, sweet Molly while Cami went up to the front desk to check in.  I was watching her out of the corner of my eye, worrying about what this was doing to her when I suddenly heard a deep and heart-breaking sob.  The receptionist asked if Cami would like a counselor to come in.  They were kind.  Cami said no and pulled herself back to as normal a mood as one could be during those circumstances.   She was as pale as I have ever seen her.

    The rest of the day was a blur.  I try to remember who we saw and what they said but the result was "We need to remove the kidney....we are sure it is not cancer."  They removed the kidney a few days later.  What a hard day that was.  We held Molly and kissed her until I'm sure she was really bugged by all the kissing.  I tried so hard to act as if I was not afraid when they took her down to surgery.  I was terrified.  I will always remember the nurse carrying Molly off to surgery.  I will always remember holding my thirty something daughter on my lap like she was a little girl again.  She was so terrified...I tried to act as if I was not.

    After many hours they called us back in a room while the team of surgeons said they were pleased by the outcome.  They had removed the kidney and were 99% sure that it was not cancerous.  When we were finally able to see Molly she was on a hospital bed looking so still.  Sometimes she would sigh and it was the saddest most ragged sounding sigh.  We sat by her for a long time.  Finally I left and went back to stay at Cami's house and her and Steve spent the night.  Cami is haunted by the fact she did not pick Molly up after surgery.  I wish she could forgive herself.  She remembers watching Molly wake up and stare at the wall and she feels so guilty that she was afraid to pick her up.  Anyone would be afraid to pick up a baby only a few days old after an intense surgery on the kidney but somehow my poor daughter has identified this time as being a great failure to her daughter.  She was frozen with fear and heartbreak but Cami does not forgive herself.  I wish she could.  She has been the bravest mother ever.

    After returning home the waiting game started.  The bioposy was supposed to be back in a few days.  We waited and waited and waited.  Finally we showed up for the appointment at Dornbecker and I knew as soon as I saw the oncologist.  "I'm so sorry" she said "We were so sure it was not cancer but it is.  It is a Wilm's tumor.  That is really good news.  When it comes to childhood cancer you have won the lottery.  It can be successfully treated with chemotherapy.  Molly will be on chemo for the next few monthes." 

    We did not feel as if we had won any kind of lottery.  We were terrified.

     

     

Tuesday, 16 June 2009

  • Molly Jane AKA Bootsie Tout

    Have you ever met someone and felt like you have known them forever?  You feel as if you have loved that person since the day you were born.  Their  smell seems so familiar?  The way the light catches in their eyes?  That is the way I felt about Molly when she was born.  "I know you!" I said out loud and then caught myself sounding like a nutcase.  Molly's dad and I were in the same state of mind.  We were both weary and exhilerated.  It had been a longgggg labor.  I felt every pain because it was my daughter.  I'm sure Steve felt every pain because it was his wife.  We were so thrilled at the result.  Poor Cami was in the other room bleary with drugs and forgotten after being wisked into surgery after hours upon hours of medical tricks had not worked.  Just about the time Steve and I were absolutely into the perfection that was Molly her lanky, almost Abe Lincoln looking new peditrician showed up.  My son-in-law is an extraordinary photographer.  All the practice shots of flowers and their pet bassett hounds had led up to this moment - photos of the perfect Molly!!  But the doctor would not turn loose of her.  "I'm sure it is nothing" he kept muttering "But I'm feeling an enlargement around the kidney area..." He was apolgetic and almost bashful in his discovery.  After 15 minutes both Steve and were letting out impatient sighs.  He finally left after ordering an ultra-sound....purely a percaution...probably not necessary.  We kind of forgot about it until the day came for Cami and Molly to be released.  We were a little put out that poor Cami after hours of labor and a painful c-section should be expected to show up at a Emmanual Hospital in Portland for an ultra-sound.  Cami was so sleepy during the ultra-sound that she nodded off.  Something in the tech's face put me on hyper vigalence.  He actually started to sweat during the process and finally left the room.  He popped his head back in the room and said "Your doctor is calling on that phone".  Just about that time the phone rang and Molly's new peditrician's office asked that we come straight to the office.

Tuesday, 26 May 2009

  • Going to the land of the little people

    I am going to Bremerton to see my adored ones on Thursday.  I can't wait to see the quints since Lilli gave them all a haircut!  So far Molly Jane has all her hair but she better hold onto it!  Lilli is practicing to be the first kindergarten hairdresser.

    My daughter Cami let me know that I was sending messages out to the universe while I thought I was just sending messages to individuals.  I am in about first grade in the school of using blogs, facebook etc.  I am improving.  Remember that choice on grade school report cards?  I used to receive poor under "Uses time wisely" the first quarter, then the second quarter the box that said improving would be checked.  I don't really think I ever actually improved however and I still don't use time wisely.  I feel better now though that there is a name for it - ATTENTION DEFICIET DISORDER

Monday, 18 May 2009

  • My Best Friend Margie

    My best friend Margie is not just the best friend ever....she is the best grandma ever.  I called her the other day just for our regular chat and she sounded very shaky.  Her granddaughter Bailey had fallen playing basketball and it was serious.  The fall originally knocked Bailey out but she bravely got up and walked home when she came to.  Her mother took her to Harrison Hospital in Bremerton.  They examined her and decided she was good to go home.  Luckily Bailey began vomiting pretty hard before her mom had her outside of the hospital.  Hospital personnel pulled her back in and ordered an ultrasound where they found her poor little skull was cracked in three places.  She was airlifted to Harborview in Seattle and she is still there today although her latest report was good and there is a possibility that after three days and nights she may finally get to go home.  The first night Margie left Bailey's room at 1:00pm and slept in her car.  The second night Margie slept in a vacant room at the hospital getting a few hours of sleep.  Even though Bailey's mom and dad have barely left her bedside, her Grandma has been there constantly as well.  She wouldn't be anywhere else...that is the kind of grandma she is.  Thank God Bailey is on the mend.  Thank God my poor friend will get some sleep!  She doesn't just miss sleep for her own granddaughter.  When Courtnee was lonely in the hospital on bed rest she slept in a chair to keep her company.  After the quints came home Margie took the night shift several times and got up with my grandchildren all night and that is the kind of best friend/grandma she is.

GrandmaCheri

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    • Name: GrandmaCheri
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    • Member Since: 4/18/2009

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  • Grandma to 8 including a set of 3 year old quintuplets.

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